Offers medical information, patient information, and family support for individuals affected by Von Hippel-Lindau Disease.
Online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering and training programs for professionals.
A community of support and information; organizes an annual PVNH Disorder Awareness Day. PVNH is a rare neuronal migra- tion disorder.
International and national online communities to support chil- dren and adults who have Multiple Hereditary Exostoses (also known as Hereditary Multiple Osteochondromas).
Information and referral, and advocacy for non-English speaking residents in the New Bedford area to assist them in receiving appropriate social services.
Offers services in 44 languages, employing certified medical interpreters who follow a Standard of Practice, have training in Confidentiality and HIPAA, and receive a CORI check.
An online network for parents of children with life-limiting ill- ness, providing resources and support around issues of anticipatory grief and end-of-life planning.
A compendium of online health information in a wide variety of languages and EthnoMed, which provides ethnic and medical information pertinent to immigrant and refugee groups.
A program for any child with mental and/or physical disabilities, organized by Wilmington Youth Soccer Association volunteers, designed to provide the opportunity to learn and play soccer.
Advocates, promotes education, supports research, and offers emotional support and support groups for patients, family members and caregivers for those affected by liver diseases.