Site includes links to various agencies and a network of over 65 families worldwide, including a community posting forum.
Variety of family supports and services offered, including educa- tional advocacy.
Provides medical and psycho-social supports, services and referrals to families who are affected by the 43 related diseases.
A parent-to-parent outreach program for new parents of babies born with Down Syndrome.
Statewide parent organization holds annual conference, picnic, and workshops throughout the year. Publishes a newsletter for parents. Maintains a list of parent support groups.
Offers a wide range of therapeutic programs for young children, and a Chapter 766-approved school for children and youth ages 3-22 with multiple disabilities.
Clinical evaluations completed by a licensed and registered occupational therapist; on-road evaluation and training with a licensed driving instructor may also be recommended.
The state’s affordable housing bank, offering rates below conventional market to support rental and home ownership opportunities for low-and moderate-income families.
State-funded loan program provides loans to improve acces- sibility to the principal residence of adults with disabilities and families of children with special needs.
Free legal services for income-eligible families on educational issues for children 3-22. Advocacy for parents, including Autism Special Education Legal Support Center.
Education and support services for families of children with a wide variety of disorders that affect a child’s growth.
Works with public and private adoption agencies to recruit adoptive families for children in foster care.
Provides services and supports in Southern NH and Northeast Massachusetts for people with developmental disabilities includ- ing residential care, non-vocational day programs, shared living, independent living, family support and education & recreation activities.
Dedicated to working with the blind and visually impaired, offer- ing social activities for children, teens, and adults.
A human service agency working with communities, youth and families providing a continuum of programming including: counseling, prevention, intervention and education services.
Dedicated to fostering optimal health, nutrition, and well-being of children with food allergies by providing education and a caring support community for their families and caregivers.
Christian organization offering support programs for parents of children with disabilities. Trainings for churches building a welcoming community, a family-to-family pen pal program, and local family retreats.
Provides education, training, advocacy, mediation, adoption services, counseling, housing, transportation and residential ser- vices.
10 program centers offer a wide range of assistance through education, advocacy, flexible services, and respite options Emergency Respite Care, Specialized Foster Care-for children and adults.
Committed to leadership in education by developing and supporting leaders, strengthening School-Family-Community connections, and improving systems that serve children and youth through its programs.
Information and referral, and advocacy for non-English speak- ing residents in the New Bedford area to assist them in receiving appropriate social services.
Offers services in 44 languages, employing certified medical interpreters who follow a Standard of Practice, have training in Confidentiality and HIPAA, and receive a CORI check.
Instructive horseback riding programs for people with disabilities. Many offer a sliding fee scale. Provides listing of PATH Intl. programs throughout the state.
Provides support, spreads awareness, educates, and advocates for those affected by Acquired and Congenital Heart defects. Spanish phone line: 877-586-6888.
Serving Brockton, Attleboro and surrounding towns. Provides information and referrals for childcare services and in-home health and homemaker services for the elderly and disabled.
Provides children’s services, family support programs, residential services, and adult day and foster care program to children and adults with developmental disabilities and their families.
A volunteer self-help, not-for-profit support group forpersons and families dealing with Hermansky-Pudlak Syndrome HPS- and re- lated disorders, such as Chediak Higashi Syndrome.
A coalition of healthcare consumers and advocates providing information, referral, personal and legal advocacy regarding health care and health insurance in Massachusetts.
NHIC is a health information referral service that links consumers and health professionals with health questions to organizations best able to provide answers.
Promotes positive decision-making skills, provides preventive health and social services.
Public interest law firm whose mission is to provide pro bono legal representation to low-income residents experiencing diffi- culty accessing or paying for needed medical services.
Answers questions on a broad range of topics: educational rights, treatment options, diagnostic procedures, and locating support and services.
Online database profiles 200,000 public, private and charter schools pre-K to grade 12; offers articles, worksheets and videos to help parents support learning at home.
Offers a program during the school year for girls, regardless of disability; also offers inclusive summer camps.
Agency dedicated to improving the lives of people with develop- mental disabilities and their families.
of support. The peer-to-peer relationship offers support from someone who is familiar with the experience of preterm birth, life in the NICU, a child born with special health care needs, preg- nancy and/or infant loss.
Enhances life for individuals affected by Sickle Cell Disease or trait, with condition-specific information, support group and so- cial supports, and community-building activities.
Advocates for improved access to care, diagnosis, early and in- novative medical intervention, long-term lifestyle improvement, and therapeutic compliance.
Provides a wide range of services: case management, financial assistance, trained respite providers, family counseling, advoca- cy, social activities and job training.
Provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. Services include through such services as its web- site, publications, phone consultation, conferences, workshops, publications and many others.
Offers intensive case management services, respite, flexible funding, support groups, Latino medical services, recreation, and residential services for persons with developmental disabilities.
Offers information and medical research, including a national family conference, on ichthyosis and related disorders. Also offers financial assistance.
Aids families who need assistance in caring for their children with autism; funds education and research into the causes and consequences of autism.
Information and referral, advocacy, workshops and support groups. Offers support in English, Spanish, and Portuguese. (Closed referral system DCF). Makes referrals to the Southeastern Mass. Legal Assistance Cor- poration, to provide legal services for children with disabilities. Intakes for referrals are processed by phone only.
A national information system designed to provide ready access to an extensive body of education-related literature. Adminis- tered by the National Library of Education (NLE).
Website containing medical and cultural information about many immigrant and refugee groups. Cultures include: Cam- bodian, Chinese, Eritrean, Ethiopian, Hispanic/Latino, Hmong, Karen, Oromo, Somali, Somali Bantu, Tigrean and Vietnamese.
Dedicated to improving the lives of children with craniofacial conditions, including cleft lip, cleft palate, and other head and facial differences.
Information on policies, programs and personnel at U.S. Department of Educa- tion. Features updates on current education legislation.
Provides programs in English and Spanish to support parents’ emotional needs and promotes parenting skills.
State-specific resources for state and local education and early intervention systems, sample letters (in 13 languages), litera- ture search tool, and parent centers, families and educators to improve programs and results for children with disabilities.
Provides free legal assistance and training to people with disabil- ities throughout the state in areas including special education services, accessibility, and discrimination.
Provides support and promotes awareness, research, and target- ed treatments for chromosome 15q duplication syndrome.
Offers informational activities and works to increase awareness of the congenital birth defect Dandy-Walker.
Educates families and the public about mood disorders, bipolar disorder, and depression. Website offers information, message boards, chat rooms, and lists of practitioners.
DBSA educates the public, healthcare professionals, and legisla- tors about the diagnosis and treatment of bipolar disorder and depression.