Provides the XP family with support, advocacy, information and protection while promoting research. (Offers a summer camp for XP families Camp Sundown).
Accepts donations and offers durable medical equipment (DME) to families living in Southern NH and MA.
Information and resources for parents of children from birth to age 3 years.
For teens also faced with a severe life-limiting medical con- dition, the transition from childhood to adulthood can be especially challenging. Wish Upon a Teen offers creative social opportunities such as spa days, family outings, new room design and more.
Online database of articles written by parents of young children with visual impairments or multiple disabilities, as well as links to resources and ways to connect with other families.
A non-profit organization that helps children and young adults 21 years and younger with disabilities obtain medical equipment or services that is not provided by their insurance companies.
White Mountain Adaptive Snow Sports School at Loon Moun- tain.
Supports research and the development of the most up-to-date educational materials regarding Williams syndrome.
Alert bulletin on issues going on in Washington DC and how they will affect people with disabilities.
Waterville Valley Adaptive Sports is dedicated to empowering individuals with disabilities through access and instruction in sports and recreation for life.
Sup- ports programs and research that help educate, rehabilitate, and improve the lives of children and youth with disabilities.
Website offers a comprehensive collection of Stories of Hope, patient resources, information about each step in the Transplant process, and links to support groups across the country.
Empowering individuals with disabilities through year-round, statewide sports and recreation.
Offers medical information, patient information, and family support for individuals affected by Von Hippel-Lindau Disease.
Provides patients and family with information about diseases and identifying resources at the same time that promotes educa- tion and research about Leukodystrophy.
Promotes research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to af- fected individuals and families.
Focuses on improving the quality of life for people living with spinal cord injuries and disorders. Services include a newsletter, peer support, and accessibility consultations.
Information on policies, programs and personnel at U.S. Department of Educa- tion. Features updates on current education legislation.
The Office of Communications and Outreach leads USDOE’s communications and outreach efforts.
Offers information on policies, procedures and what to expect at airport security specifically for passengers with disabilities who want to prepare for the screening process prior to flying.
Dedicated to finding a cure for Tuberous Sclerosis while improv- ing the lives of those affected; offers information and resources with online support and in-person support groups.
A forum where those affected by the disease can work together with medical professionals to better understand the condition.
Immediate educational, emotional and financial support to fam- ilies with a diagnosis of Twin-to-Twin Transfusion Syndrome.
Aims to increase acceptance of those with disabilities through hands-on classroom activities with 3rd and 5th grade curricu- lum.
Offers an information and referral service, legislative advocacy, technology initiatives and research programs to consumers and families of children with Cerebral Palsy.
Offers grants of up to $5,000 for families of children with critical healthcare treatment, services, or equipment not covered or not fully covered by their parents’ health benefit plans.
Information and referrals, adult and parent support groups, kids group, lending library, advocacy services, newsletter, and physi- cian referral service.
Maximizes professional development opportunities for sec- ondary transition, college, and career readiness of youth with disabilities.
A national, free service of mobile barbers and hairstylists who travel to residences and provide in-home hair care for people who are elderly or disabled.
On-line resources for families and professionals, research, advo- cacy, educational info, photos, and volunteer opportunities.
Dedicated to helping children obtain the medical supplies and equipment they desperately need.
Regulates, tests and registers therapy dogs and handlers for the purpose of visiting nursing homes, hospitals, etc.
Educational programming, online training, and local chapters to prevent brain, spinal cord, and other traumatic injuries.
Offers resources on adaptive equipment and training to family members of individuals with special needs.
Supports individuals facing physical, cognitive, emotional, be- havioral and learning challenges.
The Maggie Welby Foundation offers grants for children and families that have a financial need for a particular purpose in- cluding help with bills, athletic opportunities, medical needs, or an opportunity that a child would not otherwise have.
Education and support services for families of children with a wide variety of disorders that affect a child’s growth.
Supports caregivers of children with special healthcare needs; offers information, equipment program, and grants.
Families who have a child that has been inpatient for 30 days within a month may apply for $300 to pay for expenses including rent, mortgage, utilities, childcare, prescriptions, etc.
Families who have a child with cancer may apply for financial assistance to help pay for mileage, airfare and lodging when their child needs to stay near the hospital for treatment.
Residential school for students with mental health issues, au- tism, developmental disabilities, and emotional and behavioral challenges, ages 6 to 22 years.
Dedicated to educating, empowering and supporting families affected by autism.
Gives children living with Cystic Fibrosis and their family the oppor- tunity to “take a breather” from everyday emotional, financial, and spiritual stresses caused by their disease. Creating smiles, laughter, and magical memories is our goal.
Dedicated to improve the level of understanding, diagnosis and treatment of Tarlov cysts.
Enhances the lives of children facing life-threatening and chronic illnesses by matching them with college athletic teams to create a support network of laughter, strength and support.
Technical assistance on behavior and social/emotional issues to caregivers, service providers, families, and administrators; train- ings, workshops, seminars, newsletter, parent resources.
A nonpartisan policy resource and technical assistance center partnering with foundations, government agencies, school dis- tricts and providers to support school-connected initiatives.
Helps people talk about their wishes for end-of-life care. Website includes a helpful Starter Kit.
Online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering and training programs for professionals.
Support, training, and resources to assist organizations and indi- viduals to develop suicide prevention programs, and to advance the National Strategy for Suicide Prevention.
Offers support, advice and information on the challenges that families face when there is no diagnosis.
Support and opportunities to individuals and providers im- pacted by a port wine birthmark and related conditions such as Sturge-Weber syndrome and Klippel-Trenaunay.
This initiative is spearheaded by the Association for Behavioral Health and Wellness (ABHW), to reduce the stigma surrounding mental illness and substance use disorders.
Provides hearing aids to people with limited financial resources; promotes hearing health awareness, research and education.
Raises money for school districts around the country to address and eliminate the ongoing bullying problem. Students can call LIFELINE at 1-800-273-8255.
A collection of internet accessible information and resources for individuals in the fields related to special education.
A charity organization affiliated with an array of non-profit organizations; runs its own Wheelchair Assistance Program.
Volunteers offer free surf lessons to children and adults with special needs in June, July and August at Gooch’s Beach, Kenne- bunkport, ME. Call for details and to register.
A collection of links to Asian-language patient care documents.
Provides financial and emotional support to families burdened by pediatric brain tumors, increases awareness and provides financial support to St. Jude Hospital.