Dedicated to eliminating birth defects caused by alcohol con- sumption during pregnancy and improving the quality of life for those affected individuals and families.
Assistance Dog placements for children, especially children with Autism Spectrum Disorder. Works with the child, family, and community to assist the child in maximizing potential.
Offers the gift of healing, hope, and honor to parents experi- encing the death of a baby through the overwhelming power of remembrance portraits taken free by trained professional photographers.
Provides resources to families and providers relative to children’s health and safety. Info about childcare programs, nutritional and physical activity checklists, and other topics.
Dedicated to bringing hope and empowerment to the stuttering community, professionals, and the general public. Education, training, support, friendship, and information.
Genetic counselors work as members of a health care team pro- viding information and support to families who have members with birth defects of genetic disorders and to families who may be at risk.
Dedicated to the treatment and prevention of Tay-Sachs, Cana- van and related genetic diseases, and to providing information and support services to families affected by these diseases.
Dedicated to the identification, treatment, and cure of urea cycle disorders, providing information and education for families and healthcare professionals.
One of ten regional ADA Centers that comprise the ADA National Network, providing information, guidance, and training on the Americans with Disabilities Act (ADA).
Peer support to children and adults who have had a limb am- putation and their families; periodic community meetings and events, Peer Visiting Program, and resource-sharing.
A nonprofit, volunteer-based family association.National network of families focusing on issues of deaf-blindness.
Help to families dealing with ectodermal dysplasia. Regional and national educational publications and newsletter. Financial assistance to qualified families for medical and dental items.
Comprehensive website leads to organizational resources on diagnosis, treatments, and resources.
Accepts donations and offers durable medical equipment (DME) to families living in Southern NH and MA.
Provides people with information and support when they are planning ahead, caring for a loved one, living with an illness or grieving a loss; also state specific advance directives.
Information specialists help locate NIH materials and other sources of medical information. Publications include information about NIAMS-sponsored research and are updatedperiodically.
Provides information on health issues within the NICHD research domain. Information Resource Center with trained information specialists available to respond to inquiries M-F 8:30-5:00 EST.
Activities focus on pediatric clinical care and quality improve- ment; offers webinars, conferences, online toolkits on family leadership, ADHD, and childhood obesity.
Compilation of information related to hearing and deafness; balance; smell and taste; voice, speech, and language.
Information dissemination to increase knowledge about diges- tive diseases. Works to identify and respond to informational needs about digestive diseases.
Consumer health publication and health information resources, including grants, research, and clinical trials.
Guides and inspires people and communities to work together to stop hate and build safe, inclusive environments, resist bullying, and promote an atmosphere of acceptance and inclusion.
Database of medical information including the health care sys- tem, access to journals, abstracts and medical records.
Resources, technical assistance, and information on secondary education and transition for youth with disabilities. Funded by US DOE, Office of Special Education Programs.
Composed of partners with expertise in disability, education, employment, and workforce development policy and practice.
Oversees the federally mandated system in each state which pro- vides protection of the rights of persons with disabilities through legally based advocacy.
Information, advocacy, and support concerning all aspects of life for individuals with Down syndrome.
The mission of the NDSS is to benefit people with Down syn- drome and their families through national leadership in educa- tion, research, and advocacy.
Provides hearing and service dogs for people who are deaf or use a wheelchair; trains and provides rescued dogs and donated puppies to promote independence.
Provides information and access to equipment and devices that can change the lives of people with disabilities, both temporary and permanent.
White Mountain Adaptive Snow Sports School at Loon Moun- tain.
Year-round adaptive sport instruction to adults and children with physical and cognitive disabilities.
National online service to help patients identify prescription assistance programs, free and low-cost clinics, condition-specific programs, and camps and associated scholarships.
Trained volunteers offer instruction for individuals with disabili- ties to ski and snowboard in winter; kayak, rowing, and paddle- board in summer at Mount Sunapee in Newbury, NH.
Supports the medical community and caregivers of children with a Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS), and Pediatric Acute-on- set Neuropsychiatric Syndrome (PANS).
Offers community, home- and school-based recreational therapy and recreational and competitive adaptive sports. Adapted equipment available to rent.
Information specific to the needs of above-the-knee, below-the- knee, and arm amputees; peer counseling, support, and medical equipment available.
Offers a variety of resources including free downloadable safety brochures, swimming program lists, Big Red Safety Toolkit, safety program grants, and community support lists.
Provides leadership and evidence-based resources to families, practitioners, policymakers, programs, and organizations. Offers parent trainings and houses an affiliated school with model classrooms.
Promotes achievement for children/youth who are deaf-blind and assists in addressing need for personnel with the skills and knowledge to serve children and youth who are deaf-blind.
National information clearinghouse for children birth-22 who are deaf and blind. Catalog and resource database, listings of specialists and consultants. Services are free.
Dedicated to expanding public understand and prevention of eating disorders and promoting access to quality treatment and support through education, advocacy, and research.
Advocates for those with chronic diseases and disabilities; committed to healthcare that will cover all, curb costs, abolish exclusions, eliminate caps, and ensure access to long-term care.
Information and comprehensive support services for individuals and families affected by multiple sclerosis.
Serves those whose lives are touched by the tragic death of a baby.
Dedicated to providing support to families, physicians, and support providers with information about an inherited disease called Neurodegeneration with Brain Iron Accumulation (NBIA).
A comprehensive catalog of adult and children’s titles, literacy programs, Children’s Book Club, and downloadable PortaBooks (read through portable Braille machines or computers).
Works to make art, beaches, sports, national monuments, amusement parks, golf courses, swimming pools, trails, and playgrounds inclusive for all people. Website lists accessible recreational opportunities.
Online repository for information about rare medical or genetic conditions, research and medical trials, patient advocacy and travel groups, and reports to federal agencies.
Independent federal agencies making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families.
Provides support for a number of Rehabilitation Research and Training Centers (RRTCs). Serve as national resource for providers and individuals with disabilities.
Focused on health promotion/obesity management among people with disabilities.
Offers information about learning disabilities LD—through a comprehensive library of articles, advocacy guides, policy- relat- ed publications, checklists, worksheets, and forms.
Raises awareness of the needs of multiple birth children by fostering local support groups and enhancing the quality of educational materials available.
Raises public awareness and enriches lives through autism- friendly interactive concerts specifically developed for children who have Autism and their families.
The mission of AMTA is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services.
Works with families and autism-specific organizations to de- crease some of the financial burden through providing funding for programs that benefit an autistic child’s specific needs.
Educational services and financial assistance for low-income families so that individuals with autism may function inde- pendently and live life free of discomfort, anxiety and pain.
Good Days provides financial support for patients who cannot afford the treatment they need by assisting with co-payments, travel, diagnostic testing, and premium assistance for medical insurance. ,
The goal of My Gym Challenged America Foundation is to provide equipment and services that enhance the quality of life and improve the physical, cognitive, emotional, and social development of children who are physically or developmentally challenged and those coping with chronic illness.
