Provides understanding and moral support for anyone affected with the diagnosis. Offers conferences, meetings, studies, online forum, and information in Spanish.
Information and emotional support for individuals with facial differences and their families to increase public understanding through awareness programs and education.
Membership organization for mental health counselors; website includes information on the role of a mental health counselor, professional ethics, and a find-a counselor search tool.
Empowers people affected with limb loss to achieve their full po- tential through education, support and advocacy. Offers a sum- mer camp program (for youth ages 10-17), an annual conference and scholarships, and excellent emergency planning tips.
Seeks to alleviate the problems of eating disorders, especially an- orexia nervosa and bulimia nervosa; provides information about eating disorders, sources and facilities for treatment.
Information and support for patients diagnosed with acoustic neuroma and other benign tumors of the cranial nerves.
Works to secure free transport for individuals who need transpor- tation assistance and have limited financial resources. Arrange- ments are coordinated with FAA licensed pilots to carry patients when regularly scheduled flight services will not suffice.
Advances awareness and treatment of Angelman Syndrome through education, information and support for individuals with Angelman Syndrome, their families and concerned parties.
Improving the quality of life for adults with congenital heart de- fects (CHD), including transition-aged youth. Provides supports to individuals, families, and the medical community.
Raises funds through CD sales to support community activities for individuals who have Autism. Well-known artists offer songs to convey themes of love, compassion, hope and healing.
Provides financial assistance to families of children diagnosed with Autism Spectrum Disorder to fund effective treatments, assessments and needed life supports.
Promotes prevention, treatment and cure of anxiety disorders, and works to improve the lives of all people affected by anxiety disorders.
Programs for individuals with physical disabilities to participate in ‘action sports’ including adaptive skiing.
Works with persons with both physical and developmental dis- abilities to provide rewarding sport or recreation experiences.
Provides support to professionals interested in dance therapy; website includes information about the field, related resources, and a locator for professionals in your area.
A global professional association committed to leadership in eating disorders research, education, treatment, and prevention. Information, resources, a newsletter and an annual conference.
A resource guide including scholarships listed by disability, deadlines, and debt-forgiveness options. Shares specific AT and accommodations.
Resource and support network for individuals with hearing loss. Comprehensive educational website and state-based networks provide parents with information and emotional supports.
Uses developmentally appropriate language which supports youth living with life-limiting illness to express and share their preferences for how they wish to be cared for and remembered.
Connects patients, families, friends and caregivers for sup- port, education, advocacy, outreach, research, and support through a variety of resources and programs.
Dedicated to effective communication for people who rely on augmentative and alternative communication (AAC). The Par- ent’s Corner is a resource for parents.
Of, by, and for deaf-blind Americans, with all types and degrees of dual vision and hearing loss, to ensure that all deaf-blind persons achieve their maximum potential.
Offer information about intellectual and developmental disabil- ities, on-line resources, periodicals and publications.
Patient education and advocacy for people with asthma and allergies. Monthly newsletter, books, pamphlets, and videos.
National organization working to alleviate suffering and the socioeconomic impact of autoimmunity. Fosters collaboration in education, research, patient services, referrals and a newsletter.
Provides a forum and rich library of white papers on behavioral health and wellness topics. Offers a quarterly newsletter and educational booklet, as well as an email support group for families and professionals.
Online Support for parents of children with special needs. Offers blogs and informational resources on child development. Pro- vides information on how to establish services for your child and parenting resources.
Dedicated to helping disabled people of all abilities to realize their dreams of inclusion, through adaptive skiing and other recreation opportunities; affiliated with 10 New England sites.
Information, publications, and guides on assistive technology options and programs. Funded by the National Institute on Dis- ability, Independent Living, and Rehabilitation Research.
Advocates for individuals who are blind/have visual impairment; radio show, periodic newsletter, state Affiliate organizations to improve community access.
Dedicated to the discovery and achievement of higher function and fitness for children and adults of all disabilities through high challenge sports.
Coordinates meetings, speakers, parent-to-parent visitation, summer camps, transportation, emergency funding, and publications.
This nonprofit organization links families to resources and hosts an annual event for Monosomy 9P, otherwise known as Alfi’s Syndrome or 9P-, a rare chromosome anomaly.
Our mission is to provide custom celebration cakes to families impacted by the critical illness of a child.
Provides trained service dogs. Training is recipient-specific and includes Autism, mobility, signal/hearing ear, seizure assistance, and emotional support.
Offers an informational guide, publications and videos on topics related to allergies and asthma; and a quarterly newsletter. Also maintains a physician referral line.
Helps reunite those who might become lost, disoriented or need assistance in a critical moment with their families, loved ones, and caregivers.
International and national online communities to support chil- dren and adults who have Multiple Hereditary Exostoses (also known as Hereditary Multiple Osteochondromas).
Comprehensive resource center serving children with physical disabilities and their families, specializing in Arthrogryposis and other less-publicized physical disabilities.
A collection of links to Asian-language patient care documents.
National organization of family members and supporters dedi- cated to improving the national early intervention program for eligible infants and toddlers and their families.
Provides a central place for families and researchers to come together; dedicated to improving the diagnosis, treatment and quality of life for those with FPIES through advocacy, education, support, and research.
The Office of Communications and Outreach leads USDOE’s communications and outreach efforts.