A volunteer self-help, not-for-profit support group forpersons and families dealing with Hermansky-Pudlak Syndrome HPS- and re- lated disorders, such as Chediak Higashi Syndrome.
A volunteer self-help, not-for-profit support group forpersons and families dealing with Hermansky-Pudlak Syndrome HPS- and re- lated disorders, such as Chediak Higashi Syndrome.
