Offers a variety of services for elders, their families, and caregivers, and persons with disabilities, so that they can remain in their homes such as Adult Foster Care and PCA services as well as offering a full range of information and referrals.
Offers grants of up to $5,000 for families of children with critical healthcare treatment, services, or equipment not covered or not fully covered by their parents’ health benefit plans.
Provides recreation and rehabilitation programs including physical therapy, occupational therapy, therapeutic riding, swim and aquatics, speech therapy, early intervention, day care, and Personal Care Attendants.
A nonpartisan policy resource and technical assistance center partnering with foundations, government agencies, school dis- tricts and providers to support school-connected initiatives.
Helps people talk about their wishes for end-of-life care. Website includes a helpful Starter Kit.
Dedicated to helping children obtain the medical supplies and equipment they desperately need.
Grassrooys movement connecting, supporting, educating, and mobilizing COVID-19 survivors to support all medical, scientific, and academic research.
Offers support, advice and information on the challenges that families face when there is no diagnosis.
Pediatric skilled nursing facility offers long-and short-term respite care for children with highly specialized medical needs.
Dedicated to delivering the highest quality of care to children with a host of orthopaedic and neuromusculoskeletal disorders and diseases, as well as cleft lip and palate.
Led by Boston Children’s Hospital, Safe Kids implements evidencebased programs such as carseat checkups, safety workshops and sports clinics, to help prevent childhood injuries.
A durable medical equipment DME-reuse program managed by MA Rehabilitation Commission. Gives a second life to donated DME such as wheelchairs, adapted strollers, standers and gait trainers, shower chairs, and more. Offers refurbished devices at no cost.
May be able to help you get brand-name and generic medicines free or nearly free if you don’t have prescription coverage and can’t afford your medicines.
Seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of financial stability relative to their diagnosis of life-threat- ening or debilitating diseases.
All newborns undergo mandatory screening for 10 genetic disorders. If you have not received information about newborn screening, call this number for information about this process and about specific genetic disorders.
Consortium of genetic service providers and consumers of genetic services promote health by increasing the awareness of genetic concerns, the understanding of the role of genetics in health care, and the availability of appropriate services.
Provides a range of resources through the Behavioral Health Library. Hosts conferences, workshops, family support programs, and can assist you with your research needs.
Genetic counselors work as members of a health care team pro- viding information and support to families who have members with birth defects of genetic disorders and to families who may be at risk.
National online service to help patients identify prescription assistance programs, free and low-cost clinics, condition-specific programs, and camps and associated scholarships.
Database of medical information including the health care sys- tem, access to journals, abstracts and medical records.
A unique federation of more than 140 nonprofit voluntary health organizations serving people with rare disorders and disabilities. Offers Patient Assistance and Patient Organization resources.
Provides people with information and support when they are planning ahead, caring for a loved one, living with an illness or grieving a loss; also state specific advance directives.
Activities focus on pediatric clinical care and quality improve- ment; offers webinars, conferences, online toolkits on family leadership, ADHD, and childhood obesity.
Consumer health publication and health information resources, including grants, research, and clinical trials.
Focused on health promotion/obesity management among people with disabilities.
An online resource with links to articles, policy statements and reports for anyone interested in creating a medical home for children and youth.
Organization’s website includes Find A Clinic and free discount pharmacy card. Clinics may provide a range of medical, dental, pharmacy, vision and/or behavioral health services.
Shares research, coordinates community advocacy and fund- raising activities, and provides information to help in caring for individuals diagnosed with a brain tumor.
Website offers a comprehensive patient section on how to find a doctor, speakers, patient safety, medication information, health- care proxy information, and an online newsletter.
Oversees licensure of physicians. Online resources include physician profiles, Patient Complaint Line, office-based surgery guidelines, and tips on financial issues related to healthcare.
Provides integrated comprehensive care coordination to people enrolled in MassHealth that have complex lifelong needs. MCCN takes the best resources and matches the supports to each person’s needs.
Dental referral service for children with special needs, low in- come dental assistance by application.
Association serving 52 community health centers through advo- cacy, technical assistance, training, and development. Patient Referral Line: 800-475-8455.
Provides information about Medicaid and the Children’s Health Insurance Program CHIP-for families seeking health insurance coverage for children and teens and families needing help locating a dentist.
Provides regulatory information, palliative care providers, and community-based programming to support individuals with life-limiting conditions who are facing end-of-life planning decisions.
Mission is to lend home-based health/hospital equipment to those in need. Recipients must be willing to promptly return equipment when no longer needed. Equipment is loaned free of charge and sponsored by Masonic Lodges across eastern MA.
Mtches seasonal parents of reemies with parents in need of support. The peer-to-peer relationship offers support from someone who is familiar with the experience of preterm birth, life in the NICU, a child born with special health care needs, preg- nancy and/or infant loss.
A coalition of healthcare consumers and advocates providing information, referral, personal and legal advocacy regarding health care and health insurance in Massachusetts.
NHIC is a health information referral service that links consumers and health professionals with health questions to organizations best able to provide answers.
Promotes positive decision-making skills, provides preventive health and social services.
Public interest law firm whose mission is to provide pro bono legal representation to low-income residents experiencing difficulty accessing or paying for needed medical services.
Promotes a better understanding of the health/education needs of students with asthma and other chronic health conditions.
Provides funding for the specialized care and treatment of New England children born with birth defects, developmental and intellectual disabilities, and genetic diseases.
Represents more than 600 consumer and health professional organizations, working together to improve the quality of life for everyone impacted by genetics.
Provides information about rare genetic conditions, relevant research, genetic testing, services available, advocacy groups, and information cited in medical journal articles.
Provides consumer-friendly information about a large number of genetic conditions. Includes a resource guide on finding genetics professionals.
Resource website to explain the concepts and provide resources around Palliative Care services, including Pediatric Palliative Care services around the country.
Advocates for improved access to care, diagnosis, early and innovative medical intervention, long-term lifestyle improvement, and therapeutic compliance.
Empowers parents of premature babies through support, advocacy, and research to improve outcomes for their preemies and themselves.
Share resources and updates about health care legislation and how it affects families of children with special needs, promote opportunities for families to work in partnership with professionals in the health care service system, and support each other in our advocacy efforts on behalf of children.
Provides a compassionate and positive environment where children with complex medical, mental health and educational needs receive specialized care so that children can reach their fullest potential and live their best life.
A grassroots network of organizations and individuals working for the consumer perspective in national/state health policy.
Provide information so that families can make informed choices about health care for their children and youth with special health care needs.
A national grassroots network advocating on behalf of children with special health care needs regarding health care reform on the state and federal level.
Emergency medical services & information, education and technical support to public and medical providers about emergency medical services available in their community.
Dedicated to raising awareness of the need to screen, identify, and develop medical treatments and protocols to enhance the lives of those affected by rare diseases.
Offers disability benefits and educational services including ergonomic evaluations, education and training programs, vocational rehabilitation services, assistance with Social Services Disability Insurance SSDI-applications and appeals.
The Data Resource Center advances the effective use of public data on the health and health-related services for children, youth and families in the United States.
Wellness and exercise programs that help people with arthritis lead healthier, active lives with online and off-line resources.
A compendium of online health information in a wide variety of languages and EthnoMed, which provides ethnic and medical information pertinent to immigrant and refugee groups.