This nonprofit organization links families to resources and hosts an annual event for Monosomy 9P, otherwise known as Alfi’s Syndrome or 9P-, a rare chromosome anomaly.
Supports for people with Scleroderma, Raynauds, Sjogren’s Syndrome, Systematic Sclerosis and their families and friends, including emotional support, education, and research.
Brings together individuals with Down syndrome for play dates, family activities, seminars, and informational meetings.
Raises public awareness of this genetic condition. Website in- cludes information about the diagnosis, copies of recent newslet- ters, and bi-annual conference.
Provides educational, social and support programs to individu- als with Down syndrome, their families, educators, health care professionals, and the community-at-large.
Offers an informational guide, publications and videos on topics related to allergies and asthma; and a quarterly newsletter. Also maintains a physician referral line.
Support services for people living with HIV/AIDS; educates the public and advocates for fair and effective AIDS policy.
Provides information on issues related to insurance coverage for Autism-Related Treatments and Services.
International and national online communities to support chil- dren and adults who have Multiple Hereditary Exostoses (also known as Hereditary Multiple Osteochondromas).
Find useful tips on educational supports, diet, field trips, and more! Information on 37 conditions.
Comprehensive resource center serving children with physical disabilities and their families, specializing in Arthrogryposis and other less-publicized physical disabilities.
When one family member serves, the entire family serves. Home Base offers clinical counseling and support to family members and close friends affected by the challenges of the deployment cycle.
Advocates, promotes education, supports research, and offers emotional support and support groups for patients, family mem- bers and caregivers for those affected by liver diseases.
National organization that works for people affected by seizures through research, education, advocacy and service. Resource materials for consumers, schools, and community.
Assists families, individuals, schools, and agencies in Western Mass. with information and support for children with autism.
