Chromosome 22 Disorders
Chromosome 22 Central is a parent-run support organization. They started in 1997 with just a handful of families who had children with what is now known as Emanuel Syndrome and now supports over 2000 families in all corners of the world, who have many different chromosome 22 disorders. The group provides information, message board, chat room, and listserv, as well as information about the biannual national conference.
