The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control Cystic Fibrosis.
Provides grants for sports wheelchairs, hand cycles, mono skis, sports prosthetics, training and competition expenses to support athletic endeavors for individuals with physical disabilities.
Technical assistance on behavior and social/emotional issues to caregivers, service providers, families, and administrators; train- ings, workshops, seminars, newsletter, parent resources.
Data- base at Citizen’s Housing and Planning Association; free pro- gram to help individuals with disabilities find rental housing in Massachusetts, primarily accessible and barrier-free housing.
Provides research and advocacy on disability housing. Runs the “Mass Access” program, which links persons with disabilities with owners and managers of accessible housing.
Information and referrals, trainings, support groups, case management and autism services specifically around advocacy, programs, and networking.
Comprehensive glossary, drug dictionary, research directory, clinical trials, information on treatment funding, and publica- tions. Services available by phone, LiveHelp Online Chat, and email.
Promotes the promotion of child-canine assistance teams to promote independence and social awareness.
Supporting people with disabilities across Cape Cod; offers life skills training and employment, residential, and transportation services.
Chapter of Disabled Sports USA, promoting adaptive sports and outdoor recreation. For local residents children and adults-and visitors to the Cape who have any disability.
Provides recreational activities to enrich the quality of life for children and young adults with physical and/or developmental disabilities.
Strives to meet the ongoing residential and community living needs of adults on the Autism Spectrum Disorder.
Offers a variety of counseling, pastoral, and grief services to fam- ilies, including support groups and an annual memorial service.
Serves a broad spectrum of caregivers from the parents of chil- dren with special needs to the families of wounded soldiers.
To prevent unnecessary institutionalization of the elderly and disabled, while providing worthwhile jobs for local people.
Free, personalized websites that support and connect loved ones during critical illness, treatment and recovery.
Online assistance on Specific Advance Directives, hospice, end- of- life, financial planning, caregivers, grieving, palliative care.
Advanced computer training for visually impaired high school and college students, ages 15-22.
Provides paid summer part-time work experience for visually impaired students ages 16-20.
Serves blind/visually-impaired persons by providing rehabili- tation, skills training, education, and self-sufficiency. Summer programs for students ages 15-22.
A web-based distance learning service for blind and visually impaired individuals and rehabilitation professionals.
Offers behavioral health and wellness programs including as- sistive technology, family support, adult day, and summer camp and internships for transition-age youth.
Provides technology for individuals with disabilities, resource and devel- opment, advocacy for inclusion in schools, and use of adaptive devices.
Empowers and gives hope to individuals and families affected by facial differences by addressing medical, financial, psychosocial, emotional, and educational needs.
Provides consultation to schools around issues of classroom be- havior management and student counseling individual or group sessions-to address emotional and social well-being.
Aims to transform the understanding, treatment, and care of complex corneal disease. Comprehensive medical services and a Patient and Community Support Center available on site.
A therapeutic after-school program for youth ages 6-11 who have experienced traumatic events or negative circumstances in their lives. Provides clinical and case management services designed to improve youths’ functioning in all domains.
Maintains resource information on activities, opportunities, and other fun information for children and teens, plus important information and resources for parents.
Improves the outcome of patients worldwide by developing best practices, conducting research, and educating medical profes- sionals and consumers.
Shares research, coordinates community advocacy and fund- raising activities, and provides information to help in caring for individuals diagnosed with a brain tumor.
The Brianna Fund provides necessary solutions to pressing mo- bility issue. Families with children birth to 22 who have specific mobility and access are eligible for funding or advocacy.
Provides direct funding to offset monthly expenses to families of children who have cancer, Mitochondrial Disease, or other serious medical conditions. A second fund can offer quality-of- life funds for the family.
Bridging the Horizon is a 501c3 non-profit initiative aimed atpro- viding entertainment experiences for people with Special Needs at a low cost.
Provides funding to families raising children with disabilities, so they can buy a sometimes costly adapted bike, and can assist families to identify bike-riding training resources.
Online support group for all disorders related to Chromosome 22. Website offers message boards, family stories, and parent contacts. Hosts periodic family events.
The Data Resource Center advances the effective use of public data on the health and health-related services for children, youth and families in the United States.
Software developed to help people with disabilities use the com- puter, available for free download. Mainly for people who do not have reliable control of a hand but who can move their head.
Camp Alsing is a residential summer camp in Unity Maine for children with high-functioning autism. Alsing campers become more connected and flexible through our program of fun and engaging activities.
Information, education and support to assist children and adults living with traumatic brain injury TBI and their families.
A comprehensive therapeutic environment for individuals with special needs. Programs include horseback riding, music therapy, yoga, massage therapy, life skills, and rock climbing.3 sites: Lex- ington, Wellesley, and Natick
Offers a parent matching program and links to support groups for a huge variety of birth defects. Also manages information about research opportunities for many genetic conditions.
Provides Information and Referral Services, a newsletter, a radio show, and an Assistive Technology Fund to maximize opportuni- ties for all blind and visually impaired persons.
Provides a myriad of services, including a free and confidential Help Chat for kids and teens over the age of 13 who are victims of all forms of bullying.
Offers training and consultation services to families, educators, health providers, and communities. Heart to Heart provides free consultation to parents of grieving children, children facing serious illness or that of a loved one.
Boston Medical Center oversees this therapeutic, medically- spe- cialized program for children of all ages.
Nonprofit telephone information, referral and action service dedicated to resolving people’s problems.
Maintains resource information on activities, opportunities, and other fun information for children and teens, plus important information and resources for parents.
A free program of companionship, support, and fun for children ages 12 and under, including children with special needs. Ser- vices provided by trained volunteers ages 55 and older.
Non-profit institution in Boston offering ballet and adaptive dance classes for all ages. Scholarship and financial assistance available.
Grants wishes to children, ages 3 to18, who have a life- threat- ening illness and live in Rhode Island and areas of Southeastern Massachusetts.
Houses the nation’s newborn screening clearinghouse; included are current support and services information and links to individ- ual state’s programs. Supported and funded as a result of the Newborn Screening Saves Lives Act passed in 2008.
Provides comprehensive information and support for brain aneurysm patients and their families. A leader in brain aneurysm awareness, education, support, advocacy, and research funding.
Parent support group designed by parents to help families challenged by children’s mental health, emotional, or behavioral needs.
Provides both a comprehensive website and online support and also helps to connect families to each other.
A year-round camp, retreat, and conference center offering a residential summer camp, family retreats, weekend programs, education, and support programs.
Provides a range of services including Early Intervention services, support groups, and case management services.
An array of services including the Children’s Behavioral Health Initiative, Community Support programs, and Family Stabiliza- tion FST-programs.
Legal advocacy for the civil rights and human dignity of people with mental disabilities. Excellent links to other sites that concern legislation, public policy and advocacy.
