Support and networking for families of kids with Batten Disease.
Provides hospital and respite housing services to critically ill children and their families.
Raises awareness and research funds for orphan diseases such as Sanfilippo Syndrome mucopolysaccharide disorders.
Pairs students ages 9+ who have Autism Spectrum Disorder with graduate students for weekly lessons. A complementary team that includes a music therapist, speech therapist, special educa- tors, and professional musicians and educators with a diagnosis of Autism.
Offers online information on the diagnosis, treatments, and ther- apies; books, conferences, and workshops; and current research opportunities.
Assists adults with ASD with employment, builds employers’ un- derstanding of ASD, and provides support and advice for adults with ASD and employers so they can work together and benefit each other.
Provides services for children, teens, and families experiencing serious emotional problems, behavioral issues, developmental disabilities, and substance abuse; wrap-around services, outpa- tient counseling, school, transition/employment services.
New England affiliate to Assistance Dog United Campaign (ADUC) hosting NH and ME summer camp programs to teach children about the experience of having a service animal. Provides information to individuals and guidance to assistance dog programs.
Provides information to individuals and guidance to assistance dog programs.
Dedicated to improving the lives of affected individuals through support, education and research.
The A-T Children’s Project was formed to raise funds to accelerate first rate international scientific research aimed at finding a cure and improving the lives of all children with A-T.
Provides assistance to families for emergency transportation needs and resources to provide medical treatment, therapies and rehabilitative equipment for their children with special needs.
Provides families affected by Autism Spectrum Disorders with information, education and support. Monthly support groups and activities are available to family members.
Autism Eats provides information on autism-friendly non- judg- mental environments for family dining, socializing and connect- ing with others who share similar joys and challenges.
ALP is a full-service ABA provider offering 1:1 behavioral therapy, parent training, social skills groups, life skills for teens, crisis be- havior management, therapist training, outreach training, and so much more. Most insurance plans accepted.
Provides information and referral, family support groups, resource library, software preview and equipment loans and a newsletter.
Serving people with Autism Spectrum Disorders and their fam- ilies; provides information and referrals, social activities, respite services, school vacation programs, a newsletter, and guest speakers.
Provides a wide range of information, resources, and support programs; also arranges for public awareness campaigns.
Information and resources for Nantucket families affected by Autism Spectrum Disorders.
Empowers and enriches the lives of families with loved ones on the spectrum through dedication to improving community outreach, advocacy, resources and support.
Activities include public policy advocacy, community engage- ment, quality of life research, and the development of Autistic cultural activities.
Provides compassionate non-emergency long-distance ground transportation to patients in need.
Community school offering developmentally appropriate music, theater, and instrumental and vocal programs for all ages.
Information about apraxia of speech or developmental verbal dyspraxia.
Strengthens the support systems of children with apraxia, pro- vides information in a comprehensive online library related to childhood apraxia.
Volunteers offer free surf lessons to children and adults with special needs in June, July and August at Gooch’s Beach, Kenne- bunkport, ME. Call for details and to register.
Assists and promotes the development of quality respite and crisis care programs; helps families locate services; serves as a strong voice for respite in all forums.
Online consumer guide regarding choosing a respite care pro- vider, additional funding and support information, and tool to identify resources in your state.
Supports research, provides information and referral, as well as service programs and support groups for individuals with arthri- tis, including children with Juvenile Rheumatoid Arthritis.
Dedicated to using and promoting the use of art to support health, development, education, social-economical adjustment, cultural inclusion, dignity and integrity in the community.
Works to improve the lives of people with Syringomyelia, Chiari malformations, and related disorders. Publishes a newsletter and offers videotapes, a conference, and support groups.
Helps refugees and other immigrants with basic needs, legal advice, Counseling and training to become self-sufficient; also provides resettlement services.
Professional organization of audiologists, speech-language pa- thologists, and speech, language, and hearing scientists offering information about related conditions and treatments.
A Special Wish Foundation, Inc., is a non-profit charitable organization dedicated to granting the wishes of children under the age of 21 who have been diagnosed with a life- threatening disorders.
Provides information, financial support, and connections for families of children who have Aicardi Syndrome.
Website has listings of local resources to provide patient trans- port or emergency relief assistance for patients needing medical air transportation.
National network matching people in need with free flights and travel resources.
Travel For Care Program offers assistance to families who havea child that needs cancer treatment. Transportation, lodging, and meals are available to eligible families who meet criteria.
Supports people who have lost loved ones to suicide with in- formation, a blog, support groups, and memorials. Hosted by a mental health counselor and trained team of moderators.
Can ease the financial burden of families facing serious illness including reimbursements for travel expenses, prescriptions, medical equipment, home supplies, co-pay and home services.
Nonprofit institute that helps students struggling with learning to improve their success in school and life. The parent organiza- tion of All Kinds of Minds is QED Foundation.
Outdoor recreation made accessible by the use of adaptive equipment, supportive techniques, and assistance as needed.
Information and emotional support for individuals with facial differences and their families to increase public understanding through awareness programs and education.
Membership organization for mental health counselors; website includes information on the role of a mental health counselor, professional ethics, and a find-a counselor search tool.
Empowers people affected with limb loss to achieve their full po- tential through education, support and advocacy. Offers a sum- mer camp program (for youth ages 10-17), an annual conference and scholarships, and excellent emergency planning tips.
Pro- vides individuals with resources to build independence, confi- dence and self-motivation through continuing education. Also offers mentoring programs and one-on-one coaching.
Seeks to alleviate the problems of eating disorders, especially an- orexia nervosa and bulimia nervosa; provides information about eating disorders, sources and facilities for treatment.
Information and support for patients diagnosed with acoustic neuroma and other benign tumors of the cranial nerves.
Provides a wide variety of supportive activities for families of children who are facing Bone Marrow Transplantation.
Proceeds support activities to normalize the lives of children and families at Mass General Hospital for Children. Activities include parties, in-home manicures, massages, and special events.
Improving the quality of life for adults with congenital heart de- fects (CHD), including transition-aged youth. Provides supports to individuals, families, and the medical community.
Raises funds through CD sales to support community activities for individuals who have Autism. Well-known artists offer songs to convey themes of love, compassion, hope and healing.
Provides financial assistance to families of children diagnosed with Autism Spectrum Disorder to fund effective treatments, assessments and needed life supports.
Promotes prevention, treatment and cure of anxiety disorders, and works to improve the lives of all people affected by anxiety disorders.
Programs for individuals with physical disabilities to participate in ‘action sports’ including adaptive skiing.
Free phone consultation, comprehensive evaluation, advocacy, and driver training program for persons with special needs.
Dedicated to increasing participation in sports among youth and young adults who have visual or mobility impairments; increasing participation to many adaptive-specific and main- stream sports programs, raising awareness, and building capaci- ty to bring more opportunities closer to home.
Works with persons with both physical and developmental dis- abilities to provide rewarding sport or recreation experiences.
Controlled by persons with disabilities, ILCs provide advocacy, information and referrals, peer counseling, independent living skills, housing assistance and Personal Care Attendants.
