High-quality educational information, community resources and parent support programs for families who have children with special needs and who are at-risk.
Genetic counselors work as members of a health care team pro- viding information and support to families who have members with birth defects of genetic disorders and to families who may be at risk.
Provides a range of resources through the Behavioral Health Library. Hosts conferences, workshops, family support programs, and can assist you with your research needs.
Dedicated to the treatment and prevention of Tay-Sachs, Cana- van and related genetic diseases, and to providing information and support services to families affected by these diseases.
Dedicated to the identification, treatment, and cure of urea cycle disorders, providing information and education for families and healthcare professionals.
Provides driver evaluations, upon request.
Provides supported housing, personal management skills, self- advocacy programs, family support counseling and mentoring, evening social events, community education/outreach, and volunteer opportunities.
Consortium of genetic service providers and consumers of genetic services promote health by increasing the awareness of genetic concerns, the understanding of the role of genetics in health care, and the availability of appropriate services.
One of ten regional ADA Centers that comprise the ADA National Network, providing information, guidance, and training on the Americans with Disabilities Act (ADA).
Peer support to children and adults who have had a limb am- putation and their families; periodic community meetings and events, Peer Visiting Program, and resource-sharing.
Year-round recreation, sports, camps, social, and leisure pro- grams for children and adults with disabilities. Camp Echo Bridge offers six weeks of summer fun in Newton Center.
Offers education, resources, and in-person activities and events for young people coping with serious illness, including cancer, HIV/AIDS, sickle cell disease, and metabolic and mitochondrial disorders.
A nonprofit, volunteer-based family association.National network of families focusing on issues of deaf-blindness.
Help to families dealing with ectodermal dysplasia. Regional and national educational publications and newsletter. Financial assistance to qualified families for medical and dental items.
Comprehensive website leads to organizational resources on diagnosis, treatments, and resources.
Accepts donations and offers durable medical equipment (DME) to families living in Southern NH and MA.
Information specialists help locate NIH materials and other sources of medical information. Publications include information about NIAMS-sponsored research and are updatedperiodically.
Provides information on health issues within the NICHD research domain. Information Resource Center with trained information specialists available to respond to inquiries M-F 8:30-5:00 EST.
Activities focus on pediatric clinical care and quality improve- ment; offers webinars, conferences, online toolkits on family leadership, ADHD, and childhood obesity.
Compilation of information related to hearing and deafness; balance; smell and taste; voice, speech, and language.
Consumer health publication and health information resources, including grants, research, and clinical trials.
ILCs are controlled and directed by persons with disabilities, for the purpose of empowering people with disabilities to advocate and take control of their lives.
Guides and inspires people and communities to work together to stop hate and build safe, inclusive environments, resist bullying, and promote an atmosphere of acceptance and inclusion.
Database of medical information including the health care sys- tem, access to journals, abstracts and medical records.
Oversees the federally mandated system in each state which pro- vides protection of the rights of persons with disabilities through legally based advocacy.
Provides hearing and service dogs for people who are deaf or use a wheelchair; trains and provides rescued dogs and donated puppies to promote independence.
Provides information and access to equipment and devices that can change the lives of people with disabilities, both temporary and permanent.
Provides support and services to families affected with PKU and allied disorders, encourages research, and increases public awareness. Support network for parents and conferences.
A group of volunteers that come from all over New England to provide people with special needs a chance to experience the outdoors through adaptive ski.
White Mountain Adaptive Snow Sports School at Loon Moun- tain.
Year-round adaptive sport instruction to adults and children with physical and cognitive disabilities.
Provides education training and support to individuals with de- velopmental disabilities: day habilitation and community based day support programs, residential services, school consultation, and home-based therapies.
Trained volunteers offer instruction for individuals with disabili- ties to ski and snowboard in winter; kayak, rowing, and paddle- board in summer at Mount Sunapee in Newbury, NH.
Supports the medical community and caregivers of children with a Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS), and Pediatric Acute-on- set Neuropsychiatric Syndrome (PANS).
Offers community, home- and school-based recreational therapy and recreational and competitive adaptive sports. Adapted equipment available to rent.
Pediatric skilled nursing facility offers long and short term respite care for children with highly specialized medical needs.
Inclusive recreation programs include Arrowhead Club for Camp (Arrowhead campers a monthly activity program), year round teen and adult programs, Parents Night Out programs, and more.
Information specific to the needs of above-the-knee, below-the- knee, and arm amputees; peer counseling, support, and medical equipment available.
Offers a variety of resources including free downloadable safety brochures, swimming program lists, Big Red Safety Toolkit, safety program grants, and community support lists.
National information clearinghouse for children birth-22 who are deaf and blind. Catalog and resource database, listings of specialists and consultants. Services are free.
Dedicated to expanding public understand and prevention of eating disorders and promoting access to quality treatment and support through education, advocacy, and research.
Advocates for those with chronic diseases and disabilities; committed to healthcare that will cover all, curb costs, abolish exclusions, eliminate caps, and ensure access to long-term care.
Mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by MS.
Information and comprehensive support services for individuals and families affected by multiple sclerosis.
Serves those whose lives are touched by the tragic death of a baby.
Dedicated to providing support to families, physicians, and support providers with information about an inherited disease called Neurodegeneration with Brain Iron Accumulation (NBIA).
A comprehensive catalog of adult and children’s titles, literacy programs, Children’s Book Club, and downloadable PortaBooks (read through portable Braille machines or computers).
Information specialists are linked to their own comprehensive database and are available to assist and direct families to appro- priate local services.
Works to make art, beaches, sports, national monuments, amusement parks, golf courses, swimming pools, trails, and playgrounds inclusive for all people. Website lists accessible recreational opportunities.
Provides support for a number of Rehabilitation Research and Training Centers (RRTCs). Serve as national resource for providers and individuals with disabilities.
Focused on health promotion/obesity management among people with disabilities.
Offers information about learning disabilities LD—through a comprehensive library of articles, advocacy guides, policy- relat- ed publications, checklists, worksheets, and forms.
Raises awareness of the needs of multiple birth children by fostering local support groups and enhancing the quality of educational materials available.
Raises public awareness and enriches lives through autism- friendly interactive concerts specifically developed for children who have Autism and their families.
The mission of AMTA is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services.
ILCs are controlled and directed by persons with disabilities for the purpose of empowering people with disabilities to take con- trol of their lives. Advocacy services, information and referrals, peer counseling, and independent living skills training.
Works with families and autism-specific organizations to de- crease some of the financial burden through providing funding for programs that benefit an autistic child’s specific needs.
Educational services and financial assistance for low-income families so that individuals with autism may function inde- pendently and live life free of discomfort, anxiety and pain.
Provides financial and emotional support to families of children with cancer up to age 18.
Good Days provides financial support for patients who cannot afford the treatment they need by assisting with co-payments, travel, diagnostic testing, and premium assistance for medical insurance. ,
