An extensive online library of available up-to-date articles, newsletters, research opportunities, interaction with our medical advisory board, and a listserv that’s online 24 hours a day.
An advocacy organization composed primarily of the parents of individuals with one of the Chromosome 18 abnormalities.
Provides information, resources, support, and financial assis- tance to persons who may be eligible for cochlear implants.
Provides highly-trained assistance dogs for children ages 5 and up—and adults with disabilities, free of charge.
A host of services that attract, educate, and unite families touched by this rare birth disorder.
A nationwide information network, sponsored by US DOE, which gathers information about the education and development of individuals who have disabilities and /or who are gifted.
Maintains comprehensive education and resources for bereaved children and adults, as well as educational workshops for care- givers and families.
Works to improve the lives of people with ADHD through educa- tion, advocacy and support. Offers support groups, information and sharing.
Provides grants for sports wheelchairs, hand cycles, mono skis, sports prosthetics, training and competition expenses to support athletic endeavors for individuals with physical disabilities.
Technical assistance on behavior and social/emotional issues to caregivers, service providers, families, and administrators; train- ings, workshops, seminars, newsletter, parent resources.
Comprehensive glossary, drug dictionary, research directory, clinical trials, information on treatment funding, and publica- tions. Services available by phone, LiveHelp Online Chat, and email.
A national organization with offices in many Massachusetts communities; provides information regarding specificdiagnoses and referral to services and supports, including parent groups.
Serves a broad spectrum of caregivers from the parents of chil- dren with special needs to the families of wounded soldiers.
Free, personalized websites that support and connect loved ones during critical illness, treatment and recovery.
Online assistance on Specific Advance Directives, hospice, end- of- life, financial planning, caregivers, grieving, palliative care.
Empowers and gives hope to individuals and families affected by facial differences by addressing medical, financial, psychosocial, emotional, and educational needs.
Improves the outcome of patients worldwide by developing best practices, conducting research, and educating medical profes- sionals and consumers.
Shares research, coordinates community advocacy and fund- raising activities, and provides information to help in caring for individuals diagnosed with a brain tumor.
Provides direct funding to offset monthly expenses to families of children who have cancer, Mitochondrial Disease, or other serious medical conditions. A second fund can offer quality-of- life funds for the family.
Bridging the Horizon is a 501c3 non-profit initiative aimed atpro- viding entertainment experiences for people with Special Needs at a low cost.
Online support group for all disorders related to Chromosome 22. Website offers message boards, family stories, and parent contacts. Hosts periodic family events.
The Data Resource Center advances the effective use of public data on the health and health-related services for children, youth and families in the United States.
Software developed to help people with disabilities use the com- puter, available for free download. Mainly for people who do not have reliable control of a hand but who can move their head.
Camp Alsing is a residential summer camp in Unity Maine for children with high-functioning autism. Alsing campers become more connected and flexible through our program of fun and engaging activities.
Dedicated to increasing diagnoses of celiac disease and other gluten-related disorders and improving quality of life for those on a lifelong gluten-free diet.
Information, education and support to assist children and adults living with traumatic brain injury TBI and their families.
Offers a parent matching program and links to support groups for a huge variety of birth defects. Also manages information about research opportunities for many genetic conditions.
Provides Information and Referral Services, a newsletter, a radio show, and an Assistive Technology Fund to maximize opportuni- ties for all blind and visually impaired persons.
Houses the nation’s newborn screening clearinghouse; included are current support and services information and links to individ- ual state’s programs. Supported and funded as a result of the Newborn Screening Saves Lives Act passed in 2008.
Provides comprehensive information and support for brain aneurysm patients and their families. A leader in brain aneurysm awareness, education, support, advocacy, and research funding.
Provides both a comprehensive website and online support and also helps to connect families to each other.
Legal advocacy for the civil rights and human dignity of people with mental disabilities. Excellent links to other sites that concern legislation, public policy and advocacy.
Support and networking for families of kids with Batten Disease.
Research briefs, publications and fact sheets on family issues.
Offers online information on the diagnosis, treatments, and ther- apies; books, conferences, and workshops; and current research opportunities.
New England affiliate to Assistance Dog United Campaign (ADUC) hosting NH and ME summer camp programs to teach children about the experience of having a service animal. Provides information to individuals and guidance to assistance dog programs.
Provides information to individuals and guidance to assistance dog programs.
Dedicated to improving the lives of affected individuals through support, education and research.
The A-T Children’s Project was formed to raise funds to accelerate first rate international scientific research aimed at finding a cure and improving the lives of all children with A-T.
Provides assistance to families for emergency transportation needs and resources to provide medical treatment, therapies and rehabilitative equipment for their children with special needs.
Autism Eats provides information on autism-friendly non- judg- mental environments for family dining, socializing and connect- ing with others who share similar joys and challenges.
Serves as an Angel Network for families of children with autism. Arranges air travel on private jets for families in need of medical care for their children.
Activities include public policy advocacy, community engage- ment, quality of life research, and the development of Autistic cultural activities.
Provides compassionate non-emergency long-distance ground transportation to patients in need.
Comprehensive catalogs of books, educational tools and textbooks, assessment tools and videos, accessible products, aids, and supplies useful to blind and visually impaired people.
Information about apraxia of speech or developmental verbal dyspraxia.
Strengthens the support systems of children with apraxia, pro- vides information in a comprehensive online library related to childhood apraxia.
Volunteers offer free surf lessons to children and adults with special needs in June, July and August at Gooch’s Beach, Kenne- bunkport, ME. Call for details and to register.
Assists and promotes the development of quality respite and crisis care programs; helps families locate services; serves as a strong voice for respite in all forums.
Online consumer guide regarding choosing a respite care pro- vider, additional funding and support information, and tool to identify resources in your state.
Works to improve the lives of people with Syringomyelia, Chiari malformations, and related disorders. Publishes a newsletter and offers videotapes, a conference, and support groups.
Professional organization of audiologists, speech-language pa- thologists, and speech, language, and hearing scientists offering information about related conditions and treatments.
Free service of the US Department of Labor, providing technical assistance to individuals with disabilities and employers about the ADA and accommodations for individuals with disabilities.
A Special Wish Foundation, Inc., is a non-profit charitable organization dedicated to granting the wishes of children under the age of 21 who have been diagnosed with a life- threatening disorders.
Provides information, financial support, and connections for families of children who have Aicardi Syndrome.
Website has listings of local resources to provide patient trans- port or emergency relief assistance for patients needing medical air transportation.
National network matching people in need with free flights and travel resources.
Travel For Care Program offers assistance to families who havea child that needs cancer treatment. Transportation, lodging, and meals are available to eligible families who meet criteria.
Supports people who have lost loved ones to suicide with in- formation, a blog, support groups, and memorials. Hosted by a mental health counselor and trained team of moderators.
Nonprofit institute that helps students struggling with learning to improve their success in school and life. The parent organiza- tion of All Kinds of Minds is QED Foundation.
