Using an arts-based curriculum, mentors help kids who have learning disabilities and attention deficit hyperactivity disorder understand their way of learning and building self- esteem.
Promotes public awareness, community education, and family support. Also brings awareness of Asperger Syndrome to medical communities and general population.
Dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
Dedicated to improving the lives of children with craniofacial conditions, including cleft lip, cleft palate, and other head and facial differences.
A grassroots network of organizations and individuals working for the consumer perspective in national/state health policy.
A national nonprofit organization helping families recognize and cope with depressive disorders. The organization provides education, outreach and advocacy to support families.
American Foundation for the Blind AFB-and the National Association for Parents of Children with Visual Impairments NAPVI-website.
Provides financial relief and support to families fightingpediatric cancers; funds provided by Family Reach primarily support ev- eryday living and non-medical treatment related expenses that arise during a child or young adult’s treatment period.
A national grassroots network advocating on behalf of children with special health care needs regarding health care reform on the state and federal level.
Online community for those who have hearing loss, Microtia, Atresia, Hemifacial Microsomia, Treacher Collins, or Goldenhar Syndrome. Offers advocacy, information, support, and funding.
Comprehensive website with general and condition-specific in- formation, types of therapies, state by state support groups and treatment program listings, free webinars, and more resources for adult and pediatric patients.
Information on policies, programs and personnel at U.S. Department of Educa- tion. Features updates on current education legislation.
Sup- ports programs and research that help educate, rehabilitate, and improve the lives of children and youth with disabilities.
Creates and shares resources, provides support, shares knowl- edge and funds research for those affected by the connective tissue disorder Ehlers-Danlos Syndrome.
Provides information and support to individuals affected by Ehler-Danlos, their families, and the medical community.
Dedicated to those affected by EDS. Information on current re- search, support networks, information for schools and more can be found on their website.
It is our hope to make vacationing easier for families with dis- abilities by organizing and funding trips that include therapists of various disciplines. Enriching Escapes will provide financial assitance, up to the entire cost of a family’s “escape,” base on each family’s level of need.
Provides reimbursement of travel expenses for patients and their families who received medical care or treatment for an epilepsy/ seizure disorder. Visit website for eligibility criteria.
State-specific resources for state and local education and early intervention systems, sample letters (in 13 languages), litera- ture search tool, and parent centers, families and educators to improve programs and results for children with disabilities.
A subject guide to thousands of the best disability resources on the internet, and a state-by-state guide todisability-related organizations on government agencies.
Brings children with severe challenges, people living with life- threatening illness and wounded veterans to live concerts to inspire joy, hope and lasting celebratory memories.
Provides therapy dogs, trained rescue dogs and service dogs for persons with disabilities to improve quality of life.
Year-round fun and emotional support to children ages 6-16 facing critical illness. Provides the venue for weekends sponsored by a number of family-based support programs.
Online resource including free newsletter for expectant and new parents and professionals, sharing a collection of balanced resources to support families.
Promotes research, awareness, support to individuals with Dravet Syndrome and related epilepsies. Offers grants for pa- tients and also awards iPads.
Offers resources for rehabilitation specialists, occupational therapists, and families who want to support individuals with developmental or intellectual disabilities to learn to drive.
Provides support and promotes awareness, research, and target- ed treatments for chromosome 15q duplication syndrome.
Dedi- cated to serving young people who are diagnosed with various childhood Dysautonomia conditions. Provides youth members with a support and outreach network.
Maintains national database on primary tumors, provides educational and emotional support to families. Offers college scholarship program to brain tumor survivors.
Provides academic, vocational, housing, recreational, and transi- tion services for individuals ages 6-22 with autism and develop- mental disabilities.
Provides education and support to those affected by cyclic vom- iting, abdominal migraine, and related disorders.
Offers informational activities and works to increase awareness of the congenital birth defect Dandy-Walker.
A non-profit resource for families of children with cerebral palsy and brain injuries. Provides education and estate planning, as well as grants for specialized equipment.
Offers camperships to children who are accepted to MPS sum- mer camps.
Educates families and the public about mood disorders, bipolar disorder, and depression. Website offers information, message boards, chat rooms, and lists of practitioners.
DBSA educates the public, healthcare professionals, and legisla- tors about the diagnosis and treatment of bipolar disorder and depression.
ASDC is a national, independent nonprofit organization whose purpose is providing support, encouragement and information to families raising children who are deaf or hard of hearing.
Dedicated to meeting the needs of those working with children who have delays in sensory motor, language, social and emo- tional areas.
Provides educational and management information about di- abetes, as well as referrals and information about programs for individuals with diabetes, including 504 Plan suggestions.
An online network for parents of children with life-limiting ill- ness, providing resources and support around issues of anticipa- tory grief and end-of-life planning.
Soccer training for active kids 7-18 years old with ambulatory cerebral palsy, stroke, or traumatic brain injury. CP Soccer is building a national league which includes a regional team, CP Soccer New England, practicing in MA from October to May. Plans include a summer 2020 camp and international tourna- ment in NJ.
Wellness and exercise programs that help people with arthritis lead healthier, active lives with online and off-line resources.
Encourages companies and individuals to donate computers and other technology, which is then matched to charities, schools and public agencies around the world.
A nonprofit volunteer-driven organization dedicated to finding the cure for Crohn’s Disease and ulcerative colitis.
CMARS provides lessons for children with disabilities to learn to ski, snowboard, kayak, canoe, cycle, hike, and participate in sports with the support of adaptive equipment.
Provides educational, residential, therapeutic, medical, clinical and behavioral services to children and adults living with severe to profound mental and physical disabilities. :
Strengthens the capacity of Head Start and child care programs to improve the social and emotional outcomes of young chil- dren; offers technical assistance and online Parent Training Modules.
National organization providing support, informational ma- terial on the National Neurofibromatosis Foundation, the MA chapter, and Neurofibromatosis.
Cure SMA provides families with a variety of resources, from daily life, to medical issues, to dealing with grief.
Maintains a listing of local support groups in Massachusetts for individuals dealing with the death of a loved one, including those who have lost a child.
Promotes an awareness and understanding of Compassion Fa- tigue and its effect on caregivers, along with practical resources to support caregivers.
Raises awareness and funds for pediatric cancer research; co- ordinates fundraising events all over the country for those who want to help find cures for cancers of childhood.
An independent nonprofit, tax-exempt organization of attor- neys, advocates, and parents. Our primary mission is to secure high quality educational services for children with disabilities.
Offers a forum for families to connect and share information about Costello Syndrome. Hosts a bi-annual conference for fami- lies and the medical community.
National organization maintains an informative website includ- ing materials on the condition and more for individuals who have cleft lip and/or cleft palate.
Our mission is to improve the quality of life and outcomes of children with CP beginning with the design, funding, and implementation of an innovative therapeutic dance pilot study.
Founded to meet the transportation needs of children who re- quire medical treatment many miles from home. Mission request line: 919-460-4334.
Provides information and parent-to-parent support for families of children who are diagnosed with Microcephaly, Lissencephaly, Polymicrogyria, or related disorders.
Provides diagnosis, treatment, and services to children and fami- lies. Leads the way in researching 22q11.2 deletion.
