A MDF toolkit, support groups, family connections, webinars, and conferences to educate affected individuals, the medical community, and community at large.
Grassroots advocacy, captioned media, certification for Amer- ican Sign Language ASL-interpreters, publications, legal assis- tance, public awareness and youth programs.
Works on behalf of children 0-8 with a primary focus oneduca- tional and developmental services and resources.
Organization’s website includes Find A Clinic and free discount pharmacy card. Clinics may provide a range of medical, dental, pharmacy, vision and/or behavioral health services.
people with mental illness and their family members
Promotes high-quality programs for individuals with disabilities and their families and advocates for access to alternative place- ments and services. Free on-line referral service.
Unites families with their critically ill newborns in the NICU. Works to reduce NICU admissions through prevention, education and research.
Helps families overcome financial obstacles by flying their seri- ously ill children to receive proper medical care and to get second opinions. Accepts financial and frequent flyer mile donations.
A pageant for girls and young women with disabilities provides opportunities to build self-esteem in a supportive environment.
Informative website, educational and networking opportunities for the community. Marcel’s Way Family Fund provides grants to individuals affected by Mitochondrial Disease.
Modest Needs is a national nonprofit empowering members of the general public to make small, emergency grants to low- in- come workers who are at risk of slipping into poverty.
Raise and train capuchin monkeys to act as live-in companions for individuals with physical disabilities.
This ultra-accessible family fun park offers an atmosphere of inclusion.
Site includes links to various agencies and a network of over 65 families worldwide, including a community posting forum.
Works to put parents of children with MPS in touch with each other. Website offers “Ask the Parents” section. Also offer scholar- ships for education, experiences, and medical needs.
Provides medical and psycho-social supports, services and referrals to families who are affected by the 43 related diseases.
An online resource with links to articles, policy statements and reports for anyone interested in creating a medical home for children and youth.
A nonprofit mental health advocacy organization. Resource Center serves the general public by providing literature, referrals, and technical assistance. Emergency Telephone Number: 800- 273- 8255. Comprehensive guide to mental health on-line, featuring over 7500 individual resources.
Helps coordinate free air transportation for individuals seeking medical treatment. Also hosts Operation Iraqi Freedom OIF- and Operation Enduring Freedom (OEF-for veterans and their fami- lies call 888-662-6794 for details).
Run by disabled artists to help them meet their financial needs. Members paint with brushes held in mouths or feet.
Dedicated to finding the causes, treatments and ultimately the cure for Multiple Hereditary Exostoses and to providing support and information to families living with this rare bone disorder.
Focuses on issues important to military families including child care, health care, spouse employment, secure retirement, and support for widows and widowers.
Provides information concerning pertinent legislation, issues impacting housing and community development programs.
Day and residential school provides 24 hour care and services to individuals ages 5-22 with brain injury, neurological disease or neurobehavioral disorders. Program is based on applied behav- ioral analysis (ABA).
Home-based, center-based and school consultations for children who have Autism, brain injury, behavioral health, or develop- mental disability. Residential and year-round programs provide education and vocational training to individuals ages 2.9-22. Programs are based on applied behavioral analysis (ABA).
The Maggie Welby Foundation offers grants for children and families that have a financial need for a particular purpose in- cluding help with bills, athletic opportunities, medical needs, or an opportunity that a child would not otherwise have.
Education and support services for families of children with a wide variety of disorders that affect a child’s growth.
Year-round adaptive recreational programs for people with physical disabilities ages four and up.
National support network for people with Marfan syndrome or related connective tissue disorders. Online community.
Coordinates free compassionate flights on small aircraft for pa- tients of all ages and families members needing transportation because of a difficult medical situation.
Offers support, networking, resources, and hope to families affected by a congenital heart defect.
Advocates, promotes education, supports research, and offers emotional support and support groups for patients, family mem- bers and caregivers for those affected by liver diseases.
Advocates, promotes education, supports research, and offers emotional support and support groups for patients, family mem- bers and caregivers for those affected by liver diseases.
Offers resources on adaptive equipment and training to family members of individuals with special needs.
Services, information and referrals, consultation, training, materials, and research programs for families in which a parent, grandparent, or child has a disability.
An easy-to-use private group calendar, specifically designed for organized helpers.
This resource for all forms of dwarfism provides resources for par- ent support, medical support, advocacy, education, and social interaction.
Lyme disease education, prevention, research, funding, and patient support. Informative website includes diagnostic and research details, information for schools, and family supports.
General information about diagnosis, symptoms, and treatment of Lyme Disease; also publicizes support groups in many Massa- chusetts communities.
Raises awareness and provides information about diagnosis and treatment, facilitates family support and promotes research.
Serves kidney patients and families, transplant recipients of all types, and donors and donor families; provides a wealth of edu- cational and supportive programs.
An international charitable organization dedicated to infusing hope, creating happy memories, and improving the quality of life for children who have experienced life-altering situations.
Dedicated to fostering optimal health, nutrition, and well-being of children with food allergies by providing education and a caring support community for their families and caregivers.
Provides information on educational materials, support groups, publications, and product information to assist with the under- standing of natural rubber latex allergy.
Residential care and support for individuals, ages 8-22, chal- lenged with Prader-Willi Syndrome, Asperger’s Syndrome, Bipolar Disorder, reactive Attachment Disorder, Post-Traumatic Stress Disorder, and developmental and educational disabilities.
Helps people lead happier and healthier lives using laughter as a healing modality; offers online trainings, resources and links to local Laughter Clubs serving diverse populations, including those with disabilities, cancer and mental health issues.
Dedicat- ed to enhancing the quality of life for all individuals with learn- ing disabilities and their families through advocacy, education, research and service.
Advances the education and general welfare of children with perceptual, conceptual or coordinative learning disabilities. Newsletter, calendar of events.
The leading accessible audiobook library for students with dis- abilities, such as visual impairment or dyslexia.
Makes the world of play accessible to children with disabilities through special play and learning centers. Lekotek kids learn new skills that build the base for literacy, mathematical reason- ing and computer use.
Provides information on diagnosis and treatment, one to onesup- port and practical suggestions to individuals and families affect- ed by Juvenile Diabetes.
Raises and appropriates funds for Duchenne Muscular Dystro- phy research to find a cure and programming to ensure children with Duchenne have the opportunity to enjoy a full life.
The Jewish Genetic Diseases website has contact information for many other websites for specific Jewish genetic disorders. They also have information on carrier screening.
Provides a nationwide online service that helps cancer patients and their families find lodging near treatment centers, many with discount rates.
Christian organization offering support programs for parents of children with disabilities. Trainings for churches building a welcoming community, a family-to-family pen pal program, and local family retreats.
Explores parenting experiences and helpful resources shared, through the lens of a parent of children with special needs, including adoption issues.
International network of parents who share knowledge, experi- ence, and emotional support. Offers a networking list, newslet- ter, and a biennial conference.
Supports families of disabled/chronically ill children education- ally and medically; website includes information about funding and emotional supports for parents and siblings.
Dedicated to training service dogs, home companion dogs, and residential companion dogs to assist individuals who have a wide range of physical and cognitive disabilities.
A national program that provides distance communications equipment and training to eligible individuals with significant combined hearing and vision loss.
