Provides financial and emotional support to families of children with cancer up to age 18.
A MDF toolkit, support groups, family connections, webinars, and conferences to educate affected individuals, the medical community, and community at large.
Grassroots advocacy, captioned media, certification for Amer- ican Sign Language ASL-interpreters, publications, legal assis- tance, public awareness and youth programs.
people with mental illness and their family members
Informative website, educational and networking opportunities for the community. Marcel’s Way Family Fund provides grants to individuals affected by Mitochondrial Disease.
Site includes links to various agencies and a network of over 65 families worldwide, including a community posting forum.
Works to put parents of children with MPS in touch with each other. Website offers “Ask the Parents” section. Also offer scholar- ships for education, experiences, and medical needs.
Collects and categorizes a wide range of valuable resources re- lated to mental health and wellness for the benefit of the general public as well as educators/mental health professionals.
A parent-to-parent outreach program for new parents of babies born with Down Syndrome.
Statewide parent organization holds annual conference, picnic, and workshops throughout the year. Publishes a newsletter for parents. Maintains a list of parent support groups.
Provides education & awareness about eating disorders & their underlying causes, in order to develop a compassionate commu- nity that promotes hopefulness & supports.
A nonprofit mental health advocacy organization. Resource Center serves the general public by providing literature, referrals, and technical assistance. Emergency Telephone Number: 800- 273- 8255. Comprehensive guide to mental health on-line, featuring over 7500 individual resources.
Inspires community involvement to support children with special needs, chronic and life-threatening illnesses through the Happy Hope Bag project.
Dedicated to finding the causes, treatments and ultimately the cure for Multiple Hereditary Exostoses and to providing support and information to families living with this rare bone disorder.
An independent state agency of the Supreme Judicial Court. Advice and legal representation on treatment rights, custody and visitation matters, guardianship abuse, insurance discrimi- nation, educational rights, housing bias, and mistreatment.
Works with the Deaf Community to meet the interpreting needs of Massachusetts residents by enhancing the quality and availability of sign language interpreters.
Day and residential school provides 24 hour care and services to individuals ages 5-22 with brain injury, neurological disease or neurobehavioral disorders. Program is based on applied behav- ioral analysis (ABA).
Home-based, center-based and school consultations for children who have Autism, brain injury, behavioral health, or develop- mental disability. Residential and year-round programs provide education and vocational training to individuals ages 2.9-22. Programs are based on applied behavioral analysis (ABA).
Providing support to parents of children who have Dyslexia and their community of support.
Advocates for effective medical research and treatments, pro- vides information and supportive services to help patients, their families and loved ones cope more effectively.
Information, support, resources and education for persons with Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS/ CFS-and Fibromyalgia FM), as well as supporting advocacy and research.
Committed to helping people with mental illness find employment, housing, education, services and support in the community. Recovery/ rehabilitation centers called “Clubhouses.”
Provides recreation and rehabilitation programs including physical therapy, occupational therapy, speech therapy, early intervention, day care, and Personal Care Attendants.
Provides recreation and rehabilitation programs including physical therapy, occupational therapy, therapeutic riding, swim and aquatics, speech therapy, early intervention, day care, and Personal Care Attendants.
Advocacy and protection for the Deaf, Hard of Hearing and Deaf- Blind people in Massachusetts; focus on access to a variety of Deaf interventions. Co-hosts activities and an annual consum- er conference with MCB and MRC.
Brings together families who want to talk to someone who un- derstand their situation.
Provides education and promotes awareness of Lyme Disease, both acute and chronic and other tick borne illnesses.
Education and support services for families of children with a wide variety of disorders that affect a child’s growth.
Parent support to families of children with visual impairments; speaker meetings, internet resources, quarterly newsletters, social events and legislative advocacy opportunities.
National support network for people with Marfan syndrome or related connective tissue disorders. Online community.
Offers support, networking, resources, and hope to families affected by a congenital heart defect.
Dedicated to working with the blind and visually impaired, offer- ing social activities for children, teens, and adults.
This resource for all forms of dwarfism provides resources for par- ent support, medical support, advocacy, education, and social interaction.
Funding for integrative therapies available for those diagnosed with cancer before the age of 21 years who are currently un- dergoing treatment or suffering from the late effects of cancer treatment.
Lyme disease education, prevention, research, funding, and patient support. Informative website includes diagnostic and research details, information for schools, and family supports.
General information about diagnosis, symptoms, and treatment of Lyme Disease; also publicizes support groups in many Massa- chusetts communities.
Provides information specific to the diagnosis, financial sup- ports, and advocacy efforts for those affected by insect-borne diseases; also hosts monthly support group in Sturbridge.
Raises awareness and provides information about diagnosis and treatment, facilitates family support and promotes research.
Serves kidney patients and families, transplant recipients of all types, and donors and donor families; provides a wealth of edu- cational and supportive programs.
Works to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families, and increase availability of all organs for transplantation.
Dedicated to fostering optimal health, nutrition, and well-being of children with food allergies by providing education and a caring support community for their families and caregivers.
Provides information on educational materials, support groups, publications, and product information to assist with the under- standing of natural rubber latex allergy.
Residential care and support for individuals, ages 8-22, chal- lenged with Prader-Willi Syndrome, Asperger’s Syndrome, Bipolar Disorder, reactive Attachment Disorder, Post-Traumatic Stress Disorder, and developmental and educational disabilities.
Dedicat- ed to enhancing the quality of life for all individuals with learn- ing disabilities and their families through advocacy, education, research and service.
Advances the education and general welfare of children with perceptual, conceptual or coordinative learning disabilities. Newsletter, calendar of events.
The leading accessible audiobook library for students with dis- abilities, such as visual impairment or dyslexia.
Coordinates athletic programming designed for children of all ability levels. Facilitates monthly support network for families of children with dual diagnoses of Down syndrome and Autism Spectrum Disorder.
Provides information on diagnosis and treatment, one to onesup- port and practical suggestions to individuals and families affect- ed by Juvenile Diabetes.
Provides information on diagnosis and treatment, support and practical suggestions. Networking coffee program for parents of children with Type 1 Diabetes.
Raises and appropriates funds for Duchenne Muscular Dystro- phy research to find a cure and programming to ensure children with Duchenne have the opportunity to enjoy a full life.
The Jewish Genetic Diseases website has contact information for many other websites for specific Jewish genetic disorders. They also have information on carrier screening.
Provides a nationwide online service that helps cancer patients and their families find lodging near treatment centers, many with discount rates.
Dedicated to supporting ongoing medical research for myotu- bular myopathy and other related congenital myopathies and families lacking the resources for medical equipment.
Dedicated to improving the lives of those who have suffered aspi- nal cord injury through a comprehensive exercise program with an aim toward increasing independence and function.
Provides education, training, advocacy, mediation, adoption services, counseling, housing, transportation and residential ser- vices.
International network of parents who share knowledge, experi- ence, and emotional support. Offers a networking list, newslet- ter, and a biennial conference.
A national program that provides distance communications equipment and training to eligible individuals with significant combined hearing and vision loss.
International organization focused on GI issues in adults and children. Comprehensive website includes facts, symptoms, treatment and management, FAQs, and family resources.
Helps and supports parents of children with mosaic Down syndrome in meeting new people and research. The website includes education, support, and Family Connect, an online parent-to-parent program.
