Dedi- cated to serving young people who are diagnosed with various childhood Dysautonomia conditions. Provides youth members with a support and outreach network.
Maintains national database on primary tumors, provides educational and emotional support to families. Offers college scholarship program to brain tumor survivors.
Provides education and support to those affected by cyclic vom- iting, abdominal migraine, and related disorders.
Offers informational activities and works to increase awareness of the congenital birth defect Dandy-Walker.
A non-profit resource for families of children with cerebral palsy and brain injuries. Provides education and estate planning, as well as grants for specialized equipment.
Offers camperships to children who are accepted to MPS sum- mer camps.
Educates families and the public about mood disorders, bipolar disorder, and depression. Website offers information, message boards, chat rooms, and lists of practitioners.
DBSA educates the public, healthcare professionals, and legisla- tors about the diagnosis and treatment of bipolar disorder and depression.
ASDC is a national, independent nonprofit organization whose purpose is providing support, encouragement and information to families raising children who are deaf or hard of hearing.
Offers workshops, educational, equipment, and financial resources to families of children with hearing loss. Provides spe- cialized early intervention services.
Dedicated to meeting the needs of those working with children who have delays in sensory motor, language, social and emo- tional areas.
Provides educational and management information about di- abetes, as well as referrals and information about programs for individuals with diabetes, including 504 Plan suggestions.
Community-based, culturally competent, comprehensive care for women, children, adolescents and families infected, affected or at risk of HIV/AIDS.
An online network for parents of children with life-limiting ill- ness, providing resources and support around issues of anticipa- tory grief and end-of-life planning.
Wellness and exercise programs that help people with arthritis lead healthier, active lives with online and off-line resources.
A nonprofit volunteer-driven organization dedicated to finding the cure for Crohn’s Disease and ulcerative colitis.
National organization providing support, informational ma- terial on the National Neurofibromatosis Foundation, the MA chapter, and Neurofibromatosis.
Cure SMA provides families with a variety of resources, from daily life, to medical issues, to dealing with grief.
Raises awareness and funds for pediatric cancer research; co- ordinates fundraising events all over the country for those who want to help find cures for cancers of childhood.
Offers a forum for families to connect and share information about Costello Syndrome. Hosts a bi-annual conference for fami- lies and the medical community.
Offers comprehensive audiological services. Hearing screen- ing and assessment available at Assistive Devices Center in Northampton.
Offers comprehensive audiological services.
National organization maintains an informative website includ- ing materials on the condition and more for individuals who have cleft lip and/or cleft palate.
Provides 1:1 tutoring and assessment services to all ages in all subject areas. Specializing in working with individuals who learn differently.
Information on Autism Spectrum disorders, newsletter, courses and clinics. Support to parent networks.
Provides referrals to volunteer attorneys for persons with HIV & AIDS, as well as some direct legal representation and advocacy.
Support and information for parents of children with Autism, including groups, trainings, mentoring, early intervention, school and home-based programs, referrals, and resources.
The Scottish Rite Masons, Northern Masonic Jurisdiction offers free tutoring for children with dyslexia and tutor training. There are 3 centers in Mass. Newtonville, Woburn, and Worcester.
Offers mental health services, parent-to-parent support, men- tors, and intensive family services. Local offices in Lynn, Law- rence, and Gloucester.
Provides information and parent-to-parent support for families of children who are diagnosed with Microcephaly, Lissencephaly, Polymicrogyria, or related disorders.
Provides diagnosis, treatment, and services to children and fami- lies. Leads the way in researching 22q11.2 deletion.
An extensive online library of available up-to-date articles, newsletters, research opportunities, interaction with our medical advisory board, and a listserv that’s online 24 hours a day.
An advocacy organization composed primarily of the parents of individuals with one of the Chromosome 18 abnormalities.
Provides information, resources, support, and financial assis- tance to persons who may be eligible for cochlear implants.
The Children’s Center for Communication at BSD provides com- prehensive educational programs including Toddler Playgroup, Baby Sign, American Sign classes, and SibShops.
A host of services that attract, educate, and unite families touched by this rare birth disorder.
To provide comprehensive, effective, and innovative communi- ty- oriented rehabilitation services to individuals significantly challenged by mental illness in the Boston area.
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control Cystic Fibrosis.
Works to improve the lives of people with ADHD through educa- tion, advocacy and support. Offers support groups, information and sharing.
Technical assistance on behavior and social/emotional issues to caregivers, service providers, families, and administrators; train- ings, workshops, seminars, newsletter, parent resources.
Comprehensive glossary, drug dictionary, research directory, clinical trials, information on treatment funding, and publica- tions. Services available by phone, LiveHelp Online Chat, and email.
A national organization with offices in many Massachusetts communities; provides information regarding specificdiagnoses and referral to services and supports, including parent groups.
Advanced computer training for visually impaired high school and college students, ages 15-22.
Provides paid summer part-time work experience for visually impaired students ages 16-20.
Serves blind/visually-impaired persons by providing rehabili- tation, skills training, education, and self-sufficiency. Summer programs for students ages 15-22.
A web-based distance learning service for blind and visually impaired individuals and rehabilitation professionals.
Empowers and gives hope to individuals and families affected by facial differences by addressing medical, financial, psychosocial, emotional, and educational needs.
Provides consultation to schools around issues of classroom be- havior management and student counseling individual or group sessions-to address emotional and social well-being.
Aims to transform the understanding, treatment, and care of complex corneal disease. Comprehensive medical services and a Patient and Community Support Center available on site.
Improves the outcome of patients worldwide by developing best practices, conducting research, and educating medical profes- sionals and consumers.
Shares research, coordinates community advocacy and fund- raising activities, and provides information to help in caring for individuals diagnosed with a brain tumor.
Online support group for all disorders related to Chromosome 22. Website offers message boards, family stories, and parent contacts. Hosts periodic family events.
Dedicated to increasing diagnoses of celiac disease and other gluten-related disorders and improving quality of life for those on a lifelong gluten-free diet.
Information, education and support to assist children and adults living with traumatic brain injury TBI and their families.
Offers a parent matching program and links to support groups for a huge variety of birth defects. Also manages information about research opportunities for many genetic conditions.
Provides Information and Referral Services, a newsletter, a radio show, and an Assistive Technology Fund to maximize opportuni- ties for all blind and visually impaired persons.
Boston Medical Center oversees this therapeutic, medically- spe- cialized program for children of all ages.
To facilitate full participation in all aspects of life by persons with disabilities, the Commission works to remove architectural, procedural, attitudinal, and communication barriers.
