Dedicated to the study and treatment of dyslexia and related language-based learning differences. In addition, we fund research on neurological, educational and developmental issues as they relate to dyslexia.
Provides education, family support, advocacy, and funds research in the United States and worldwide. Provides online support group.
Services individual’s emotional and/or behavioral challenges, providing outpatient, residential, and academic services Ther- apeutic Mentoring and In-Home Therapy services through the Children’s Behavioral Health Initiative (CBHI).
Provides support, spreads awareness, educates, and advocates for those affected by Acquired and Congenital Heart defects. Spanish phone line: 877-586-6888.
Dedicated to the support of research for the study of early onset bipolar disorder.
The HMDSN can help point families to support groups and other parent contacts in their area. Listservs are available for families of children or adults with Hirschsprungs Disease.
Offering help and hope through compassionate care to families living with Autism or Parkinson’s Disease.
Provides support, information and therapy tools for children and their families affected by a post birth brain injury.
A volunteer self-help, not-for-profit support group forpersons and families dealing with Hermansky-Pudlak Syndrome HPS- and re- lated disorders, such as Chediak Higashi Syndrome.
Provides information and support to parents, patients, family members, caregivers, friends and professionals dealing with Krabbe Disease and related leukodystrophies.
Offers education, publications, resource library, and medical networks on its comprehensive website and emotional support through its growing network of HA Partners.
Dedicated to finding a cure providing support services to those living with HD and their families.
Promotes a better understanding of the health/education needs of students with asthma and other chronic health conditions.
Provides and promotes speech communication training for chil- dren and adults with hearing loss.
Largest national organization for people with hearing loss. Provides information, education, advocacy and support.
Answers questions on a broad range of topics: educational rights, treatment options, diagnostic procedures, and locating support and services.
Support group made up of parents who have children with up- per limb differences and who are concerned with the challenges facing the child and the entire family.
Provides support, services, education, and research on behalf of children and adults who have growth hormone deficiency due to genetic conditions, endocrine or metabolic disorders or diseases.
Raises public awareness, offers emotional support, and provides technical advice on educational, medical, and community mat- ters among families living with Rett Syndrome.
Enhances the lives of children affected by Autism Spectrum Disorder with a range of comprehensive services to address recreational, educa- tional, social, and economic circumstances.
Empowers parents of premature babies through support, advo- cacy, and research to improve outcomes for their preemies and themselves.
A parent driven, parent/professional collaborative group dedicat- ed to supporting children who are deaf or hard of hearing and the professionals who serve them.
Supports identification and eventual prevention of rare genetic disorders and provides financial assistance to families coping with the many complications of these disorders.
The mission of NGF is to find a cure for Gaucher Disease by fund- ing research, promoting awareness and educational programs, and offering support groups and financial assistance.
Provides information, education and a network for patients affected by Guillain-Barré Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy and variants.
Enhances life for individuals affected by Sickle Cell Disease or trait, with condition-specific information, support group and so- cial supports, and community-building activities.
Provides information and support to parents, patients, family members, caregivers, friends and professionals dealing with Graves Disease or Thyroid Disorder.
Dedicated to recovery for children with autism spectrum disor- ders by providing guidance and support for medical treatment to directly improve the child’s quality of life.
Assists individuals with a mental illness to attain employment, housing, wellness and friendships.
A resource to connect families who face issues related to sex chromosomes. Offers online support & discussion groups, as well as reading lists and information about research.
Represents more than 600 consumer and health professional organizations, working together to improve the quality of life for everyone impacted by genetics.
Provides consumer-friendly information about a large number of genetic conditions. Includes a resource guide on finding genetics professionals.
Online resource for parents including a PDF Guide to Tube Feed- ing and resource information about living with a feeding tube for families, daycare, and schools.
Links more than 120 chapters and state organizations focused on the issues of children and youth with emotional, behavioral, or mental health needs and their families.
A voluntary, non-profit organization dedicated to enhance the quality of life for those individuals and families affected by FG Syndrome or related disorders.
Dedicated to educating parents and pediatric professionals about the early warning signs of autism and other developmen- tal disorders.
Offers information and medical research, including a national family conference, on ichthyosis and related disorders. Also offers financial assistance.
Aids families who need assistance in caring for their children with autism; funds education and research into the causes and consequences of autism.
Provides resources, diagnosis, treatment and management, and living with food allergies; specific types of allergens; supports for severe allergies and research opportunities.
Education awareness, resources and research regarding Fragile X syndrome. Extensive parent resources through website.
Works to raise funds in the local community for families of chil- dren who have Autism Spectrum Disorder, raise Autism Aware- ness, and build community. Offers grants to Everett families to benefit their child who has Autism.
Using an arts-based curriculum, mentors help kids who have learning disabilities and attention deficit hyperactivity disorder understand their way of learning and building self- esteem.
Promotes public awareness, community education, and family support. Also brings awareness of Asperger Syndrome to medical communities and general population.
Dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
Dedicated to improving the lives of children with craniofacial conditions, including cleft lip, cleft palate, and other head and facial differences.
A national nonprofit organization helping families recognize and cope with depressive disorders. The organization provides education, outreach and advocacy to support families.
American Foundation for the Blind AFB-and the National Association for Parents of Children with Visual Impairments NAPVI-website.
Provides financial relief and support to families fightingpediatric cancers; funds provided by Family Reach primarily support ev- eryday living and non-medical treatment related expenses that arise during a child or young adult’s treatment period.
Online community for those who have hearing loss, Microtia, Atresia, Hemifacial Microsomia, Treacher Collins, or Goldenhar Syndrome. Offers advocacy, information, support, and funding.
Comprehensive website with general and condition-specific in- formation, types of therapies, state by state support groups and treatment program listings, free webinars, and more resources for adult and pediatric patients.
Creates and shares resources, provides support, shares knowl- edge and funds research for those affected by the connective tissue disorder Ehlers-Danlos Syndrome.
Provides information and support to individuals affected by Ehler-Danlos, their families, and the medical community.
Dedicated to those affected by EDS. Information on current re- search, support networks, information for schools and more can be found on their website.
Provides reimbursement of travel expenses for patients and their families who received medical care or treatment for an epilepsy/ seizure disorder. Visit website for eligibility criteria.
Online resource including free newsletter for expectant and new parents and professionals, sharing a collection of balanced resources to support families.
Local supports and information shared by parents of children with Down syndrome. Organizes support group meetings at least three times a year and social activities for teen members.
Promotes research, awareness, support to individuals with Dravet Syndrome and related epilepsies. Offers grants for pa- tients and also awards iPads.
Raises awareness and advocates for IDIC15 and Autism. Raises funds to meet the needs of those affected, as well as monetary donations to assist with research.
An online community for parents whose children have both Down syndrome and Autism Spectrum Disorder.
Provides support and promotes awareness, research, and target- ed treatments for chromosome 15q duplication syndrome.
